Sickle Cell Awareness

by / / Fashion the WORLD, Uncategorized

Sunday the 27th of August 2017

Located in side of Crotona Park

at Crotona avenue and Claremont parkway

From 1 pm – 6 pm

 

 

Love & Fashion will be working alongside S.C.T.P.N. for their 3rd annual back to school event. We will be giving away school supplies, playing games, providing food, collecting donations and most importantly registering individuals as bone marrow donors.

To help bring awareness and help in the fight against this very severe disease we will be educating the masses about Sickle Cell. Trained medical professionals will be present at the event to answer questions and give a brief description about sickle cell and new methods on combating this blood pathogen.

 

What is Sickle Cell Disease?

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The term sickle cell disease refers to a group of blood disorders that affects the hemoglobin portion of the red blood cells.

 

Hemoglobin is a protein that is responsible for carrying oxygen to all parts of the body. It gives blood its red color because it contains iron. Types of hemoglobin are:

Hemoglobin A = normal

Hemoglobin F = fetal

Hemoglobin S = sickle

Hemoglobin C,D,B-thal = other hemoglobin types

 

The Hemoglobin A (normal hemoglobin) molecule is made up of 2 alpha, plus 2 beta chains in a specific order. In Hemoglobin S (sickle), the sixth amino acid of the gene that makes beta-globin on chromosome 11 changes from glutamine to valine. This single substitution changes the hemoglobin molecules.

 

Normal red blood cells move easily through the body because they are soft, smooth, round and bendable. With sickle cell the red cells become rigid, sticky and crescent shaped. This makes it difficult for the bed blood cells to move through the tiny capillaries in the body. In addition, while red cells normally live for 120 days, in sickle cell disease red blood cells live for 10-20 days. The body cannot make red cells fast enough to keep up with the loss of cells, so people with sickle cell disease have low blood count which makes them feel tired all the time.

 

By some estimates, in the United States 100,000 Americans have sickle cell disease. “It is a rare disease in the U.S. says Dr. Gregory Kato, a sickle cell disease expert at National Institute of Health, but sickle cell disease affects millions of people in Africa, as well as Saudi Arabia, India, South America and other regions.” (NIH News in Health, April 2012)

 

No one living with sickle cell did anything wrong to have this excruciatingly painful condition. Sickle cell is inherited and we have no control over what we inherit. Sickle cell affects every organ in the body thus there is susceptibility to major organ damage. The challenges are great, however living with sickle cell also builds courage, determination, endurance, perseverance and strength, which are the same qualities each individual needs to succeed and live their dreams.

Who is S.C.T.P.N.

(Sickle Cell Thalassemia Patients Network).

SCTPN, is a 501 (c)(3) tax-exempt organization, which provides education, advocacy, referral services, and support for individuals and families living with sickle cell disease.

S.C.T.P.N. Moto: Passionate and dedicated to improving the quality of life for individuals and families living with sickle cell.

 

How can you help?

Most importantly you can help many by registering to be a bone marrow donor.

For all who can’t register to be a donor or want to do more, you can send a donation to help us fund more events, where we can sign up more parties able and willing to be donor.

How will donations be used?

Monetary donations will help to purchase supplies to register more individuals as bone marrow donors and pay staff to host other education events to help bring awareness to more communities throughout the United States.

Bone Marrow donations

Individuals who register as bone marrow donor can help to save someone’s life around the world not just with Sickle Cell patients but also with other diseases that include but is not limited to Cancer, Autism, Cerebral Palsy, Heart Failure, Multiple Sclerosis, Osteoarthritis, Rheumatoid Arthritis, Spinal cord injury, Autoimmune diseases and more.

 

Who to contact

If you would like to assist with the organization of the event contact T.Lover@loveandfashion.org

If you wish to register to be a bone marrow donor contact Siloane Glasgow (917)285-6579 Sillestre36@yahoo.com

 

Here are a few CELEBRITIES you may know who have been diagnosed with Sickle cell.

Tionne “T-Boz” Watkins (shown; singer, TLC)
Prodigy (rapper, Mobb Deep) RIP
Tiki Barber (pro football player)
Larenz Tate (actor)
Miles Davis (musician)
Paul Williams, (an original member of the legendary R&B group The Temptations)
Georgeanna Tillman Gordon, (singer of the Motown girl group The Marvelettes)

Kiki Shepard

Jourdan Dunn

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